He's forever in their hearts

Parents who lost son to blood disorder are determined to help others

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Jenni and Brian Dorman are organizing a fundraising event to benefit the Fanconi Anemia Research Fund. The Dormans organized their first fundraising event for the organization last year. Their son Scott, who was diagnosed with Fanconi Anemia, died in 2010.

COEUR d'ALENE - It's a disease few people know about.

A rare, inherited blood disorder that leads to bone marrow failure, Fanconi Anemia, is what took the life of Lake City High School graduate Scott Dorman on his 22nd birthday, Aug. 16, 2010.

Diagnosed at 2 years of age, the avid skateboarder, glass blower and motorbike enthusiast was told he wasn't going to live past 8, then 13, then 15, but he kept beating those dates until his 22nd birthday when the disease took him.

"He fought until the end," Scott's mother, Jen Dorman said.

While two years have passed, Scott's parents, Jen and Brian, have fought to raise awareness for the rare disease. They want to do whatever they can to support research for a medical breakthrough, not to help their cause, but to benefit someone who may someday face what the Coeur d'Alene couple saw firsthand.

"The goal is to save someone else's baby," Jen said. "That's what we'd like."

It started last year with a spur-of-the-moment idea to have a garage sale. Accepting donations, and selling what they could from their front yard, the Dormans netted $3,500, which they gave to the Fanconi Anemia Research Fund.

This year, the Dormans are aiming even higher, hosting a silent auction and raffle event so big, they had to switch the venue from their front yard to Riverstone Park.

Donations are still coming in, but gifts are expected to range from vacation getaways to gift baskets and dinners out. The event will have a carnival theme, with a photo booth and live music on hand, too.

So far, support has been great, the couple said, making the leap from garage sale to all-out extravaganza a little easier.

In fact, the Fanconi Anemia Research Fund, in Eugene Ore., agreed to pay the few hundred dollars in park fees so the Dormans could host the event, called Forever 22 in honor of Scott.

Because Scott will always be 22 to his family.

"I think about him a lot," said Brian, who took up glass blowing, a passion of Scott's, after Scott passed away.

The event will be from 5 to 8 p.m. Sunday, Aug. 19 at Riverstone Park - three days after Scott's birthday.

Info: Jen Dorman, 699-4661 or Brian, 699-2301

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